So, I have not done too much research up to this point. I know this type of Cancer is very rare, and anything I find might not explain our situation at all. X, on the other hand has read everything. Everything everything everything on the web about SNUC, which many of the sites are "In Memory of" sites. He tells me he is just being informed to make the right decisions about the types of care we need to consider in addition to what the doctors recommend. So last night I started to Google SNUC... I found a very good survivors web site; Cancer Compass has a very good message board where sufferers and survivors are talking about the cancer and their experiences. What a huge help this has been. I became a member of the site yesterday.
4 days from now is the surgery.
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